Condition List

Condition List 2018-03-01T17:06:46+00:00

Conditions That Can Require Tube Feeding in Children

So many parents have heard from friends, family, strangers that they don’t understand why children need to be tube fed. They haven’t heard of medical reasons that would necessitate it. Well, here is the list of medical conditions that can lead to feeding difficulties that can be severe enough to require tube feeding. The conditions are varied, and many of them aren’t visible. There is often a lengthy diagnostic process and children can go undiagnosed for years.

About this List

  • You can sort the list. Click on the arrows to sort alphabetically or by type of condition.
  • There is overlap. Children can have multiple conditions which contribute to tube feeding.
  • The classification headings aren’t carved into stone. A number of conditions could fit into multiple categories. Many conditions have a genetic component and many conditions cause dysmotility, for example.
  • Hundreds of parents and caregivers contributed to this list on the Feeding Tube Awareness Facebook page. Each condition was then reviewed to make sure that it was linked with significant feeding difficulties. The list was also reviewed by a Nurse Practitioner specializing in Pediatric Gastroenterology and Nutrition.
  • While this list is very comprehensive, we are certain that it is not complete. If you have a child that has a condition that isn’t on this list, please contact us.
ConditionType
1p35.1 DuplicationGenetic/Chromosomal
1p36 DeletionGenetic/Chromosomal
1q21.1 DuplicationGenetic/Chromosomal
1q21.1 MicrodeletionGenetic/Chromosomal
1q24.2 + 1q23.2q24.1 Deletions Genetic/Chromosomal
2p23.3-25.1 DeletionGenetic/Chromosomal
2q24.3 DuplicationGenetic/Chromosomal
2q32 MicrodeletionGenetic/Chromosomal
2q37 Deletion SyndromeGenetic/Chromosomal
3p21.1 MicrodeletionGenetic/Chromosomal
4q Deletion SyndromeGenetic/Chromosomal
6q24.1-25.2 DeletionGenetic/Chromosomal
6q25.2-25.3 DeletionGenetic/Chromosomal
6q25.3q MicrodeletionGenetic/Chromosomal
7q21.1-7q31 DeletionGenetic/Chromosomal
11q14.1- q23.2 Deletion Genetic/Chromosomal
13q DeletionGenetic/Chromosomal
14q21Genetic/Chromosomal
14q24.2 q32.33q DuplicationGenetic/Chromosomal
14q32 DeletionGenetic/Chromosomal
15q 11.2 BP1-BP2 Microdeletion SyndromeGenetic/Chromosomal
15q13.3 Microdeletion SyndromeGenetic/Chromosomal
16p11.2 MicrodeletionGenetic/Chromosomal
16p11.2 MicroduplicationGenetic/Chromosomal
16p13.3 Duplication SyndromeGenetic/Chromosomal
16p13.11 DuplicationGenetic/Chromosomal
16q22.1 DeletionGenetic/Chromosomal
18p SyndromeGenetic/Chromosomal
18q DeletionGenetic/Chromosomal
20p13 DuplicationGenetic/Chromosomal
21q21.1 DuplicationGenetic/Chromosomal
ABCA3 MutationRespiratory
Abdominal MigrainesGI
Absent Swallow ReflexSwallowing
AchalasiaSwallowing
Adrenal HypoplasiaMetabolic
Alagille SyndromeGenetic/Chromosomal
Alexander’s DiseaseGenetic/Chromosomal
Alfi’s SyndromeGenetic/Chromosomal
ALG13 MutationGenetic/Chromosomal
Allan Herdon Dudley SyndromeGenetic/Chromosomal
Alpers’ DiseaseNeurological
Amylase Enzyme DeficiencyEndocrine
Angelman SyndromeGenetic/Chromosomal
Annular PancreasStructural
Anoxic Brain InjuryNeurological
Antley-Bixler SyndromeGenetic/Chromosomal
Arachnoid Brain CystNeurological
Argininosuccinate lyase deficiencyMetabolic
Argininosuccinic AciduriaMetabolic
Arthrogryposis Multiplex Congenita (AMC)Structural
AspirationSwallowing
Atrial Septal Defect (ASD)Cardiology
Atrioventricular Canal DefectsCardiology
AutismDevelopmental
Autoimmune HepatitisGI
Avoidant/Restrictive Food Intake DisorderDevelopmental
Barth SyndromeGenetic/Chromosomal
Bartter SyndromeGenetic/Chromosomal
Beckwith-Wiedemann SyndromeGenetic/Chromosomal
Bilateral Open Opercular SyndromeCraniofacial
Biliary AtresiaGI
Bohring-Opitz SyndromeGenetic/Chromosomal
Borjeson-Forssman-Lehmann SyndromeGenetic/Chromosomal
Brain TumorNeurological
BroncheomalaciaRespiratory
Bronchial-oto-facial SyndromeCraniofacial
Bronchiolitis ObliteransRespiratory
Bronchiolitis Obliterans with Organizing Pneumonia (BOOP)Respiratory
Bronchopulmonary Dysplasia (BPD)Respiratory
Bulbar PalsyCraniofacial
Canavan DiseaseGenetic/Chromosomal
CancerDisease
Cardiofaciocutaneous (CFC) SyndromeGenetic/Chromosomal
Caroli DiseaseGI
CDKL5 DisorderGenetic/Chromosomal
CeliacImmune
Central Core DiseaseNeuromuscular
Cerebal AtrophyNeurological
Cerebellar HypoplasiaNeurological
Cerebral Cavernous MalformationNeurological
Cerebral PalsyNeurological
Cerebro-costo-Mandibular SyndromeStructural
Cervical LymphangiomaCraniofacial
CHARGE SyndromeGenetic/Chromosomal
Chemotherapy TreatmentOther
Chiari MalformationNeurological
Choanal Atresia/Bilateral Choanal AtresiaStructural
Chrondodyplasia PunctataGenetic/Chromosomal
Chronic DiarrheaGI
Chronic Intestinal Pseudo ObstructionGI
Chronic Lung DiseaseRespiratory
Cleft Lip and PalateStructural
Cockayne SyndromeGenetic/Chromosomal
Coffin Siris SyndromeGenetic/Chromosomal
Colon HyperganglionosisGI
Colonic InertiaGI
Common Variable Immunodeficiency (CVID)Immune
Complications of Medical ProceduresOther
Congenital Central Hypoventilation SyndromeRespiratory
Congenital Diaphragmatic HerniaStructural
Congenital Disorder of GlycosylationGenetic/Chromosomal
Congenital Fiber Type DisproportionGenetic/Chromosomal
Congenital Fiber-type DisproportionNeuromuscular
Congenital Heart DefectsCardiology
Congenital Myasthenic GravisNeuromuscular
Congenital Myasthenic SyndromeNeuromuscular
Congenital MyopathyNeuromuscular
Congenital Myotonic DystrophyNeuromuscular
Congenital Myotonic DystrophyGenetic/Chromosomal
Congenital Sucrase-Isomaltase DeficiencyMetabolic
Cornelia de Lange SyndromeGenetic/Chromosomal
Corpus Callosum DisordersNeurological
Cortical DysplasiaNeurological
Costello SyndromeGenetic/Chromosomal
Costo-Mandibular SyndromeStructural
Cranial Nerve DamageNeurological
Creatine Transporter DeficiencyGenetic/Chromosomal
Cri du ChatGenetic/Chromosomal
Cricopharyngeal AchalasiaSwallowing
Crohn’s DiseaseGI
Cyclical Vomiting Syndrome (CVS)GI
Cystic FibrosisGenetic/Chromosomal
CystinosisGenetic/Chromosomal
Cytomegalovirus (CMV)Other
Cytomegalovirus (CMV)Other
Dandy Walker MalformationNeurological
Delayed MyelinationNeurological
Denys-Drash SyndromeGenetic/Chromosomal
Diabetes InsipidousOther
DiGeorge SyndromeGenetic/Chromosomal
Dilated CardiomyopathyCardiology
DNA Ligase IV Deficiency Syndrome (LIG 4)Genetic/Chromosomal
Down Syndrome (Trisomy 21)Genetic/Chromosomal
Dravet SyndromeNeurological
Dubowitz SyndromeGenetic/Chromosomal
Dumping SyndromeGI
Duodenal AtresiaStructural
Duschenne Muscular DystrophyNeuromuscular
Dysautonomia/Autonomic DysfunctionNeurological
DysphagiaSwallowing
DystoniaNeuromuscular
Edward’s SyndromeGenetic/Chromosomal
Ehlers-Danlos SyndromeConnective Tissue
Electrical Status Epilepticus in Sleep (ESES)Neurological
Encopresis with overflow incontinenceGI
Entrokionase DeficiencyMetabolic
Eosinophil-associated Gastrointestinal Disorders (EGID)Immune
Eosinophilic Colitis (EC)Immune
Eosinophilic Esophagitis (EoE)Immune
Eosinophilic Gastritis (EG)Immune
Eosinophilic Gastroenteritis (EGE)Immune
Epidermolysis BullosaGenetic/Chromosomal
Esophageal Atresia (EA)Swallowing
Esophageal StrictureSwallowing
Familial DysautonomiaGenetic/Chromosomal
Fanconi AnemiaGenetic/Chromosomal
Fetal Alcohol SyndromeOther
Fibromatosis HyalineGenetic/Chromosomal
Food Protein Intolerance Enterocolitis Syndrome (FPIES)Immune
FoxG1 SyndromeNeurological
FOXP2 Gene MutationGenetic/Chromosomal
Fragile X SyndromeGenetic/Chromosomal
Freeman-Sheldon SyndromeGenetic/Chromosomal
Functional DyspepsiaGI
GastrochisisStructural
Gastroesophageal Reflux Disease (GERD)GI
GastroparesisGI
Gauchers DiseaseGenetic/Chromosomal
Glucose Transporter Deficiency Syndrome (Glut 1)Metabolic
Glutaric AcidemiaMetabolic
Glycerol Kinase DeficiencyMetabolic
Glycogen Storage DiseaseMetabolic
GM1 GangliosidosisGenetic/Chromosomal
Goldenhar SyndromeStructural
Growth Hormone DeficiencyEndocrine
Hanhart SyndromeStructural
Hereditary Fructose IntoleranceMetabolic
Heterotaxy SyndromeStructural
Heterotaxy with AspleniaCardiology
Hirschsprung’s DiseaseGI
Hollow Visceral MyopathyStructural
HoloproscencephalyNeurological
Hunter Syndrome (MPS II)Genetic/Chromosomal
HydranencephalyNeurological
HydrocephalusNeurological
Hydrops FetalisOther
Hyperactive Gag ReflexSwallowing
Hypereosinophilic Syndrome (HES)Immune
Hyperinsulinism/HypoglycemiaEndocrine
Hypoplastic Left Heart SyndromeCardiology
Hypoplastic Right Heart SyndromeCardiology
Hypothalamic MalfunctionNeurological
Hypoxic Ischaemic Encelpathy (HIE)Neurological
Ideopathic Chronic PancreatitisEndocrine
IgA Deficiency (complete)Immune
Immunodysregulation polyendocrinopathy enteropathy X-linked (IPEX)Immune
Infantile MyofibromatosisStructural
Infantile SpasmsNeurological
Intestinal MalrotationStructural
Jacobsen SyndromeGenetic/Chromosomal
Joubert SyndromeGenetic/Chromosomal
Kabuki SyndromeGenetic/Chromosomal
Kapur-TorielloGenetic/Chromosomal
KBG SyndromeGenetic/Chromosomal
Ketotic HypoglycemiaEndocrine
Kidney DiseaseRenal
Kidney FailureRenal
Kleefstra SyndromeGenetic/Chromosomal
Klinefelter’s SyndromeGenetic/Chromosomal
Koolen de Vries SyndromeGenetic/Chromosomal
L1CAM Mutation (X Linked Hydrocephalus)Genetic/Chromosomal
Laryngeal and Esophageal Vascular MalformationsSwallowing
Laryngeal CleftSwallowing
Laryngeal Nerve DamageSwallowing
LaryngomalaciaSwallowing
Leigh’s DiseaseNeurological
Lennox-Gestaut SyndromeNeurological
LeukodystrophyNeurological
Lissencephaly/Micro-LissencephalyNeurological
Loeys-Dietz SyndromeNeurological
Long-chain-Hydroxy Acyl-CoA Dehydrogenase Deficiency and Trifunctional Protein Deficiency (LCHAD/TFP)Metabolic
Lymphatic MalformationStructural
Lymphocytic Interstitial PneumoniaRespiratory
Lynch SyndromeDisease
Macrocephaly-Capillary Malformation SyndromeGenetic/Chromosomal
MacroglossiaStructural
Major Aortopulmonary Collateral Artery (MAPCA)Cardiology
Malignant Migrating Partial Epilepsy in InfancyNeurological
Maple Syrup Urine Disease Genetic/Chromosomal
Marshall Smith SyndromeGenetic/Chromosomal
MastocytosisImmune
McCune Albright SyndromeGenetic/Chromosomal
MECP2 Duplication SyndromeGenetic/Chromosomal
Medium Chain Acyl CoA Dehydrogenase Deficiency (MCAD)Metabolic
Menkes DiseaseGenetic/Chromosomal
Metachromatic LeukodystrophyNeurological
Methylmalonic AcidemiaMetabolic
Microcephalic Osteodysplastic Primordial Dwarfism Type 1Genetic/Chromosomal
MicrocephalyNeurological
MicrogastriaStructural
MicrognathiaStructural
Miller Deiker SyndromeGenetic/Chromosomal
Mitochondrial DiseaseGenetic/Chromosomal
Mixed Connective Tissue DiseaseConnective Tissue
Moebius SyndromeGenetic/Chromosomal
Mosaic Monosomy 21Genetic/Chromosomal
Mosaic Trisomy 9Genetic/Chromosomal
Mosaic Trisomy 18Genetic/Chromosomal
Mosaic Trisomy 22Genetic/Chromosomal
Mowat-Galloway SyndromeGenetic/Chromosomal
Moyamoya DiseaseStructural
MPS-III Sanfilippo SyndromeMetabolic
Multicystic EncephalomalaciaNeurological
Multiminicore DiseaseNeuromuscular
Multiple Acyl-CoA Dehydrogenase Deficiency (MADD)Metabolic
Muscle Eye Brain DiseaseNeuromuscular
Muscular DystrophyNeuromuscular
Myasthenic SyndromeNeuromuscular
MyocitisImmune
Myoelectrical Nerve AbnormalityNeurological
Myotubular MyopathyNeuromuscular
Nager SyndreomeGenetic/Chromosomal
Necrotizing Entercolitis (NEC)GI
Nemaline MyopathyNeuromuscular
Neuroendocrine Cell Hyperplasia (NEH)Respiratory
NeurofibromatosisGenetic/Chromosomal
Niemann-Pick DiseasesGenetic/Chromosomal
Nonketotic Hyperglycinemia (NKH)Metabolic
Noonan SyndromeGenetic/Chromosomal
Norrie DiseaseGenetic/Chromosomal
Occulofacialcardiodental SyndromeCraniofacial
Ohtahara SyndromeNeurological
OmphaloceleStructural
Opitz G/BBB SyndromeGenetic/Chromosomal
Oral Motor DisordersSwallowing
Organ TransplantsOther
Ornithine Transcarbamylase Deficiency (OTCD)Metabolic
PachygyriaNeurological
Pallister-Hall SyndromeGenetic/Chromosomal
PanhypopituitarismEndocrine
Paralyzed Vocal CordSwallowing
Partial Trisomy 1qGenetic/Chromosomal
Partial Trisomy 7Genetic/Chromosomal
Partial Trisomy 9qGenetic/Chromosomal
Partial Trisomy 13Genetic/Chromosomal
Partial Trisomy 18Genetic/Chromosomal
Patent Ductus Arteriosis (PDA)Cardiology
Pelizaeus-Merzbacher DiseaseNeurological
Pelizeaus-Merzbacher DiseaseNeurological
Perinatal StrokeNeurological
Periventricular Leukomalacia (PVL)Neurological
Pervasive Development Disorder – Not Otherwise Specified (PDD-NOS)Developmental
Pfeiffer SyndromeCraniofacial
Phelan-McDermid SyndromeGenetic/Chromosomal
Pierre-Robin SequenceStructural
Pitt-Hopkins SyndromeGenetic/Chromosomal
Polymicrogyria/PolymicrogyriacephalyNeurological
Pompe DiseaseMetabolic
Pontine Tegmental Cap DysplasiaNeurological
Pontocerebellar HypoplasiaNeurological
Poor Suck Response (in newborns)Swallowing
PorencephalyNeurological
Prader-Willi SyndromeGenetic/Chromosomal
PrematurityOther
Primary IGF-1 DeficiencyEndocrine
Propionic AcidemiaMetabolic
Pseudohypoaldosteronism Recessive Type 1 MTODMetabolic
Pulmonary AtresiaRespiratory
Pulmonary HypertensionRespiratory
Pulmonary HypoplasiaRespiratory
Pulmonary Interstitial GlycogenosisRespiratory
Pulmonary Vein StenosisCardiology
Pyloric StenosisStructural
Rapid-onset obesity with hypothalamic dysfunction, hypoventilation and autonomic dysregulation (ROHHAD)Neurological
Restrictive Lung DiseaseRespiratory
Rett SyndromeGenetic/Chromosomal
Riley Day SyndromeGenetic/Chromosomal
Ring Chromosome 6Genetic/Chromosomal
Ring Chromosome 9Genetic/Chromosomal
Ring Chromosome 14Genetic/Chromosomal
Ring Chromosome 18Genetic/Chromosomal
Ring Chromosome 21Genetic/Chromosomal
Rubenstein-Taybi SyndromeGenetic/Chromosomal
Rumination SyndromeGI
Russell-Silver SyndromeGenetic/Chromosomal
Sandhoff DiseaseGenetic/Chromosomal
Sandifer SyndromeGI
Say Barber Biesecker Young-Simpson Ohdo SyndromeGenetic/Chromosomal
SchizencephalyNeurological
Sensory Processing DisorderDevelopmental
Septo Optic DysplasiaNeurological
Severe Combined Immunodeficiency (SCID)Immune
Severe Food AllergiesImmune
Severe Oral AversionSwallowing
Shaken Baby SyndromeOther
Shone’s SyndromeCardiology
Short Bowel SyndromeStructural
Short Chain Hydroxy Acyl-CoA Dehydrogenase Deficiency (SCHAD)Metabolic
Short-Chain Acyl-CoA Dehydrogenase Deficiency (SCAD)Metabolic
Shwachman-Diamond SyndromeGenetic/Chromosomal
Smith Magenis SyndromeGenetic/Chromosomal
Smith-Lemli-Opitz SyndromeGenetic/Chromosomal
Sotos SyndromeGenetic/Chromosomal
SOX2 Mutation or DeletionGenetic/Chromosomal
SP-B DeficiencyRespiratory
Spastic DiplegiaNeurological
Spielmeyer-Vogt-Sjogren-Batten DiseaseNeurological
Spina BifidaNeurological
Spinal Muscular Atrophy (SMA)Neuromuscular
Spinal Muscular Atrophy with Respiratory Distress (SMARD)Neuromuscular
Static EncephalopathyGenetic/Chromosomal
Stickler SyndromeGenetic/Chromosomal
Stroke (perinatal and non-perinatal)Other
Subglottonal StenosisSwallowing
Superior Mesenteric Artery Syndrome (SMAS)Structural
Surfactant Protein C DeficiencyRespiratory
Tay Sachs DiseaseGenetic/Chromosomal
Tetralogy of Fallot with Pulmonary Atresia (TOF/PACardiology
Tetrasomy 9pGenetic/Chromosomal
Tracheoesophageal Fistula (TEF)Swallowing
Tracheolaryngeal CleftSwallowing
TracheomalaciaSwallowing
Translocation 5;8 (partial loss 5q33.3/partial gain 8p21.1-23.2Genetic/Chromosomal
Translocation Chromosome 22Genetic/Chromosomal
Transposition of the Great Arteries (TGA)Cardiology
Traumatic Brain InjuryNeurological
Treacher Collins SyndromeCraniofacial
Trichohepatoenteric SyndromeGenetic/Chromosomal
TrichothiodystrophyGenetic/Chromosomal
Tricuspid AtresiaCardiology
Trisomy 4pGenetic/Chromosomal
Trisomy 5qGenetic/Chromosomal
Trisomy 9Genetic/Chromosomal
Trisomy 10Genetic/Chromosomal
Trisomy 13Genetic/Chromosomal
Trisomy 14Genetic/Chromosomal
Trisomy 17Genetic/Chromosomal
Trisomy 18Genetic/Chromosomal
Truncus ArteriosusCardiology
Turner SyndromeGenetic/Chromosomal
Twins Anemia Polycythema Sequence (TAPS)Other
Type IV Jejunal AtresiaStructural
Ulcerative ColitisGI
VACTERL/VATER AssociationStructural
Valproate SyndromeOther
Velo-cardio-facial SyndromeGenetic/Chromosomal
Ventricular Septal Defect (VSD)Cardiology
Very Long Chain Acyl-CoA Dehydrogenase Deficiency (VCLADD)Metabolic
Visceral HypersensitivityGI
Waardenburg’s Syndrome Type 4Genetic/Chromosomal
West SyndromeNeurological
Wiedemann-Steiner SyndromeGenetic/Chromosomal
Williams SyndromeGenetic/Chromosomal
Wolf-Hirschhorn SyndromeGenetic/Chromosomal
Worster Drought SyndromeGenetic/Chromosomal
Xq28 DuplicationGenetic/Chromosomal
Zellweger Syndrome Spectrum/Peroxisomal Biogenesis DisordersGenetic/Chromosomal